New member looking for answers
Posted 23 July 2012 - 05:17 PM
I've been sick for almost 5 weeks now. In a way that I never have been before. It started with diarrhea, then some blood and pain. At first instinct I thought it was my appendix. I have had appendicitis before but never infection, so they didn't need to do an appendectomy. The ER did a CT and said I just had a virus. I also have PCOS, so I went to see my OB just in case it was my ovary causing the pain. I indeed had a cyst that needed to be removed and while she was in there she found endometriosis. (Though from what I understand the cyst was on the left side and my pain is on the right- so it was just a coincidence) Then I got unbelievably constipated, thought to be a result of the narcotics. When I stopped the pain meds the pain increased. I cant eat or even drink sometimes so I'm fatigued and dehydrated. I went to urgent care and had an x-ray which showed a mass of stool in the area where the pain was but no explanation as to why it was blocked there. I have nausea, mild vomiting, loss of appetite, headache, gross things down there, pain, fatigue, dizziness and even a very mild fever. Feels like never ending gastroenteritis to be honest. After 2 GI docs who took my insurance blew me off, I went to another doctor that I used to see but doesn't take my insurance. Thankfully he only charged me $25 and is doing a colonoscopy through the hospital so my insurance will cover it. Meanwhile, I'm waiting and pretty terrified. I've never had symptoms like this despite a life long history of gastrointestinal issues. Matter of fact, I've been constipated for up to a month without so much pain.
I saw my job posted on Craigslist which was a punch in the face. I hate my job, but it's the only one I have, so I need it. But they won't let me come back with restrictions. I work in healthcare, we aren't allowed to be sick. I can't just run to the bathroom if I have to. I thought about wearing depends and if I can get down a pain med of some sort I'd just go and power through. But without a medical clearance and knowing that I won't need more time off, they won't let me come back.
I'm hoping to find some support on here. I don't have anyone close to me to talk to or even advocate to the doctors if need be. Anyone have any advice, similar situations, or resources? It would be appreciated. Tell me this gets easier please!
Posted 23 July 2012 - 06:56 PM
Sorry to hear your doing so bad. Unfortunately until you know extactly what your dealing with it going to be hard to really help you. Once you get the result from your colonscopy you will know what you are up against.
If your looking for IBD resources click on the link under my signature or go to the IBD 101 subforum. In the IBD resource thread there is everything from medication info, alternative therapies, diet programs, supplements, blogs, etc.
The chicken soup for bad days post in the IBD forum has great recipes for when your feeling very bad.
Started with Candida diet + supplements.
Currently in remisson following SCD and GAPs diet. Antioxidants, Fish oil, multi vit, Colazal 3X2.
My Progress - http://www.ibdsuppor...-need-to-share/
IBD Resource Post - http://www.ibdsuppor...esource-thread/
Posted 17 March 2013 - 02:29 AM
hi i am sorry you are having such a hard time i to have endometriosis and had numerous operations,thus now have not much organs left inside i to am in the same situation waiting to see specialist as chronic diarreh fatigue,joint pain sickness.have they checked that your bowel is not stuck to ovary?as i have just had this and can be excrusiating.