Living with a seton
Posted 21 May 2012 - 11:18 AM
I'm a new member here, and a comparativly new member of the world of IBD too.
A bit of background info to begin with - I'm a 34 year old British guy, fit healthy and pretty outgoing.
Following a months extreme discomfort I was recently diagnosed with an abcess in the 6 o'clock position on my anus, having visited both my GP (several times) and now also a colorectal surgeon I am scheduled for surgery to have the abcess laid open and drained. The CR Surgeon however, after some 'investigating' believes that the abcess has become a fistula, and I am now also finding fecal matter in the discharge too so not good news really.
So far the pain has been OK. Not great by any stretch but OK and I can deal with it. I also understand that the surgery is a necessary evil in trying to get this to heal so I am approaching it with an open mind in regards to healing and recovery - looking at the long term pictuer and all that!
What concerns me is that on my last visit to schedule the surgery the CR surgeron said he would more than likely want to put a seton in the fistula to aid draining as it's quite a 'high' one or so he thinks. this could be in there for a year or more depending on how it responds.
I know what these are following research on the web but I am concerned as to how much having one put in will impact on my lifestyle.
Normally I run, bike, swim, surf, do yoga, go to the gym and lead a very active lifestyle.
Does anyone have any experience in how a seton can affect your day to day lifestyle and in particular exercise?
I worry that I am going to be constantly aware of this thing hanging out my ass and that I won't be able to do the sports that I love. As someone who loves exercise and keeping fit the prospect is quite daunting. Will I still be able to go in the sea? Can you run with one in?
Any advice on these matters would be much apprecieated as the doctors are being predictably non-commital!
Are they any other guys out there who have gone through this?
Thanks for reading,
Posted 21 May 2012 - 11:39 AM
But you may find others out there who are like you, very athletic and still doing what they normally do. See if their healing is ongoing or if they are still suffering. That would be a big clue to me.
Not sure what kind of seton you will be getting. There are rubber ones, and satin ones. Could be more. I got the satin string one, and it is very thin. I am glad I got that one because after almost 2 years it fell out recently on it's own, very slowly I suppose because my fistula healed up nicely (with lots of faith and hope in God to heal it).
I also ate the SCDiet and that kept my Crohns in remission while the fistula healed.
Hope others will have more answers for you. Good luck.
Hope4 (and it came true)
Posted 22 May 2012 - 02:15 PM
Posted 11 October 2012 - 12:05 AM
hope things are progressing along nicely for you> I am a new member also and am just thrilled at this website..so good to hear other peoples experience - both good and bad.
I think the swimming in the sea would be good for your skin after all its just like a sitz bath. Once you get down the track a bit more and the fistula heals more you could probably go swimming - but I would wait for a while - you dont want to encourage any bacteria. I have had my seton in for 2 years and 3 months so far -waiting for it to break but have been told recently by the surgeon it wont ever heal completely - and probably would have to have another one put in its place. ( I had the silicone plug put in while I was living in the USA but it failed - only has a 40-50% success rate) Though its annoying part of our everyday life it sure beats having the pain of abscesses re occuring... You really just need to take things slowly with your exercise program - your body will let you know if its too much. I started putting very cotton compacted makeup remover pads around the seton to give a little more protection - and also as I have leakages at times its a bit of a back up As you have experienced with the dr being non comital we do experience slightly different things so you will just have to perserve a bit with your own limitations.
Best of luck