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Anyone Here Ever Had Part Of Your Colon Removed??


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#1 AMcCall

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Posted 16 January 2001 - 09:47 PM

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When I was little, I almost did. I was very sick as a child. For the most part, my adult years have been pretty good compared to when I was younger. It got so bad at one point that the doctor told my parents that if I didn't get better after another round of Prednisone, they'd have to remove part of my colon.

The reason I ask about this now is because my UC is flaring up big time. I'm having that all-too-familiar bleeding, pain and D. To make things worse, I haven't seen my colon doctor in nearly 7 years. So I'm a bit afraid that if something IS wrong, that I've let it go on for way too long. I have an appointment Thursday, and I'm pretty sure he will be sending me for a colonoscopy just to check things out. I don't know what I'd do if I had to have part of my colon removed. I have a cousin (distant cousin who I don't see a whole lot...) who had the surgery done for his Chrohn's Disease (hope I spelled that right...), but they were able to go back in later and re-route his intestines. He seems to be feeling much better now, but was pretty sick after the initial surgery. I guess this is a last resort type of procedure, but having come so close to losing part of my colon as a child, I am a bit worried that it may get that bad again.

If any of you have had this done, how did it affect your life?? And how do you get over losing a part of yourself to this horrible disease?? I hope you don't mind my asking...if you'd rather not talk about it, I understand. But I thought I would post it here just to see if anyone had this procedure done, and how you feel afterwards.


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#2 Guest_LSkinner_*

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Posted 01 May 2001 - 01:00 AM

I would strongly recommend trying to heal yourself through diet change rather than opting for surgery. I have read on the internet re self-healing and this person has been disease-free for 17 yrs after being faced with the choice of surgery or new experimental drug. During these disease free years he has been off medication altogether. His web site is www.colitis-crohns.com PLEASE READ BEFORE IT'S TOO LATE.
Good luck.
Lisa

#3 Guest_rcrlegal_*

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Posted 05 April 2001 - 05:47 PM

About 10 years ago I had a portion of my colon removed (bowel resection). I had Crohns and had a particulary bad flare up. Ran all the usual tests and my doctor recommended the resection to remove the affected portion (colectomy with resection of right color and proximal 2/3 of transverse colon and resection of terminal ileum with the end anastomosis). I was actually glad they wanted to do the surgery because I felt so bad and the doctor told me I would be "as good as new" after the surgery, but with no guarantee that the Crohns would not return. Well, I wished now that I had not had the surgery. I have had chronic diarrhea since. As soon as I eat, I have to go. I have approx. 6-8 BMs a day and it's not very convenient when you work. I have been taking Immodium since the surgery, but it seems to have lost its effectiveness. I just feel like when I had Crohns I could at least control it somewhat with meds. I even went into remission one time for about a year! Now, I have found nothing that helps with the D and the gas and the bloating and the gurgling, etc. Calcium helps somewhat.

I would recommend to anyone who is contemplating colon surgery to find out exactly what part of the colon they plan on removing. Talk to your doctor about the consequences of having it removed. Unfortunately, I believed my doctor when he said I would be "as good as new"

Rhonda

#4 Ginny

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Posted 04 February 2001 - 09:41 PM

Hi,

My entire colon was removed 14 years ago after a bad flare-up of UC. After it was removed, the diagnosis changed to Indeterminate Colitis which has characteristics of Crohn's.

I had to have an ileostomy for about 6 months until I was well enough to have J-pouch surgery done, then a temporary ileostomy for 5 weeks until it healed enough to be reconnected.

It is different from the reconnection you described in that they use a small part of the small intestine to make an internal pouch which takes the place of a colon and eventually begins to function like one. So there are other options even if the whole colon is too diseased to save.


In answer to your questions:

"If any of you have had this done, how did it affect your life??"

Believe it or not it had a positive effect on my life. After going through it I feel that I can handle anything. I feel much better now than when I had UC.

"And how do you get over losing a part of yourself to this horrible disease?? "

You concentrate on all of the good things you have...family, good friends, modern medicine that makes this type of surgery possible and enables one to lead a normal life again.

Naturally when I first find out that I had to have surgery, it was devastating--I cried like a baby. But I was so weak and in so much pain toward the end that it was such a relief to have the diseased colon out of my body. Even the ileostomy was bearable, actually much easier to get used to than I ever imagined.

Keep in mind though that this was 14 years ago when the only drugs used to treat it were prednizone and sulfasalazine. Now there are many more drug options which I would have been able to try.

Feel free to ask anything else or to e-mail me.

Best of luck to you with your appointment!

#5 Guest_skingley_*

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Posted 20 February 2001 - 04:59 AM

I had a bit cut out at the end of my small intestine begining of large. I was constant pain, vomiting, diagnosed as IBS and fed up. After seeing a specialist he got me in for tests and discovered the inflammed area, cut it out and it was Crohns. Now....I'm a perfect weight, good appetite and feel great. No real side effects except for coming out slightly looser atthe other end.
Hope all goes well.





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